An Alternative Mom on…..

A BREAKTHROUGH in the Elusive Sleep & Habitual Scratching

June 16, 2007 12:31 am

rubThe Angel woke up this morning, happily, as usual, and our morning ritual began. In the toilet, she was grabbing her left sleeve and holding it down with her fingers.

“Look, mom! Chopped fingers! And I can just rub! ” she exclaimed excitedly while rubbing her legs.

I listened and stared, wide-eyed and exclaimed equally excited, “Yes! Yes! Just rub!”

She then went on to do the same to both hands and told me, again, “Look! Just rub! Rub!”

I requested for her to wait for me while I rushed for the camera. How can I not capture this moment down?

Three nights ago, I was a broken and defeated mother. I had a ‘fight’ with the Angel, I stormed out of the room and needed a mental break from our usual (almost three years) sleeping pattern - reading before bed (enjoyable), talking about anything (enjoyable), then nightmare begins - habitual scratching, broken, bloody, skin, crying, helping her to rub, encouraging, coaxing, angry feelings, broken sleep, same vicious cycle in the middle of the night - not all in the same order, sometimes sleep come easy, but the cycle never fails to return, either at bedtime or middle of the night. It can last between an hour to two to three. My neighbours know what kind of family we are. My heart went out to them but I was equally at my wits’ end.

My friend has been encouraging me to seek help about the Angel’s sleeping habit that is making my motherhood a misery and I had written the following entry in my draft some time ago:

“Probably three months ago, I was still complaining about the number of days I get to sleep in in almost three years (less than ten!!!). Nowadays, the Angel wakes up far later than me (if we have no planned programme, between 9-ish to 11ish sometimes)!

So, I have survived the “I don’t want to wake up but have to wake up” part. I really used to hate waking up when I hadn’t had enough sleep and I had to face the whole day in routines again.

Now, I have to battle sleep that is interrupted for at least an hour.

This has never changed before though. It has always been like this. The Angel has almost never slept through except three really gorgeous weeks after a holiday in Rome. We ruined it all by going back to Singapore for a month and since then, I have never had a good time with sleep, before or after, only that three weeks.”

So, my misery was not only interrupted sleep - hers and mine, but it is that ritual of going to sleep that is potentially scary. We call it habitual scratching.

The Angel, as you know, has eczema. The eczema is actually kept at bay (except during flares and allergies) but compounded during sleep, boredom, tiredness or undress. In such situations, her intuition is to scratch. Scratching leads to a vicious cycle, the more you scratch, the more the need to scratch. So, it was thus every night. Sleep was a nightmare for me. Already, I have spent my entire day with her, completing chores, keeping the house and everyone happy, you’d think that the night is a moment of peace or rest or space. I would usually be too worked up to sleep after handling such a child and feeling the pain from all that unnecessary broken skin. I have had all kinds of emotions before, from hugging her and not letting go to walloping her and even breaking my own glasses. For three years, I have not had less than ten nights of such emotionally intensifying nights. I am not keen to end up with two distressed people in my house to handle. I handled this alone, some nights, without much grace.

My friend, G, who has seen the Angel in all her worst situations (habitual scratching to allergic reactions) and saw me handling her and helping me when she could, told me, “One Angel is equal to my two A (her son).” She wasn’t being negative, she really saw, sometimes, the sheer potence when the situation is out of hand.

So, three nights ago, I was completely broken. I was almost at the end of my tenterhooks. I had already threatened to chop the Angel’s fingers off if she continued to live in such a manner. Very often, my ending words, “Chop or control?” Her reply, “Control.”

So, two hours later, I left the room, defeated. What’s the point of fighting? For three years, I have not given up trying, that sheer emotionally intensity, that interrupted sleep, the pain.

After I left the room, she gave up scratching. She came out asking for water. I gave her some and told her, “Go to sleep on your own from tonight onwards!” I saw her to her bed, asked her to cover herself with blanket and silently said, “Goodnight.”

I left her in there to sleep, and bawled out my defeat through msn to my friend, A, who has always been my pillar of strength in my motherhood struggles.

She suggested buying this Special Shirt that will help with the scratching. We tried cover-up-fingers-rompers when the Angel was a baby and it worked but not when she was older and on bandages because by then, she would take the bandages off. The Special Shirt is a good idea but I know that if I fight fire with fire and make her wear that Special Shirt, we will have a frustration issue to deal with.

After that defeated night, I crept into bed in the morning and slept. I brought the Angel out and bought the “Hug” book (now you know why I said we were both in need of a hug).

That night, we had a breakthrough. After the usual reading, she said, “Tonight, I will go to sleep myself.” She remembered what I told her sternly the night before? I abided. I tucked her in and left the room. The alternative dad was sooooo surprised to see me (he slept through the whole episode the night before) and I quickly filled him in on what happened. In between, the Angel came out of the room about four times, to pee, to pee again, to pee yet again (trying very hard but nothing of course!) and finally, for a hug. Then, she was asleep.

That was it.

For the first time in my life, it was a weight off my shoulders. I haven’t felt so relieve in a long, long while (three years is a long while). I haven’t felt that life is so beautiful in a long, long while. I haven’t felt that hope can be so near.

The day after, the nap was the same. Last night, going to sleep was a bit harder than the first night with interruptions and some scratching but manageable ones.

This morning, the Angel mooted the idea of a sewn-up tshirt all on her own! She herself told me that she can rub! The idea of chopped fingers is very sadistic but I know that she has finally understood what I was driving across to her (for years!). And she must have been thinking about how she can help herself to rub. She doesn’t need to have her fingers chopped. She just need to have her fingers protected, out of sight! Thank God for such a revelation to her!

In our excitement (at the very moment she told me her idea), we tried on various tshirts to see if they were long enough to be sewn up at the sleeves. None did and I promised her, we will go out and buy one that can be sewn and I will let her thread the needle while I sew it for her.

Tonight, she had a bit of problem sleeping on her own. In the end, after coming out several times, she told me, “Pat me for a long time then you go out.”

So, I asked her, “Hmmmm….how long is a long time?”

“Pat for a long time. Only when your work is finished, then you go out.”

In her words, the pat wasn’t long, the work was finished quickly and I was out. It’s not only so, my heart is so full of gratitude for the sudden turn of events, for the revelation of the hurt my child is causing to herself and the quality of life that has been affected thus far and how amazingly, my burden is relieved.

I really want to thank those of you who have understood and who have prayed for me. I spoke to Jean and I know she has remembered us in prayer and my friend, A. And for those of you who know of my recurring problems, savour this moment with me. It is a tremendous burden, relieved, and the task of fighting that habitual scratching is now within the realms of possibility. My dreaded nights are gone and my shoulders are no longer tense.

Sleep is sweet and life is made more beautiful.

16 Responses to “A BREAKTHROUGH in the Elusive Sleep & Habitual Scratching”

The New Parent wrote a comment on June 18, 2007

Hi AM–after reading your last two very powerful posts I am filled with both sadness and joy. She sounds like she has much to deal with as do you. Children are so resilient. Sleep is so important for a parent and for the child. So much is better with it!

Thinking of you both.

Shirley (Binky) wrote a comment on June 18, 2007

AM,

Oh, I feel so sorry to hear about the situation you and your Angel went through; I really am. Here are some bear hugs for both of you *hugs, hugs, hugs x1000* I understand about the sleep deprivation part, and that always makes me extremely cranky during the day if I am only able to get only a few of nap winks the night before (these days, mostly because of Ian waking up to feed in the middle of the night, and decides to toss around and babble noisily for 1 hours before getting back to sleep).

We have a nephew who lives in UK (Manchester) who also has eczema. I’m not sure about the acuteness of his condition and how he is doing now, but the last time we were there for a visit, I saw his mom bathed him with some medicated bath water for eczema treatment. I never asked his mom what causes eczema, so if you are comfortable to discuss this, could you share with me please?

Thanks for sharing, AM.

jean wrote a comment on June 19, 2007

Hi AM, I’m so glad to read that Angel now know that she can’t scratch and instead rub it when she is feeling the itch. Praise the LORD!

Will continue to keep you both in our prayer list. Take care, my friend!

jean wrote a comment on June 19, 2007

Hi AM,

I forgot to inform you that I have briefly written abt the Devotions books at :

http://mommyjean.wordpress.com/2007/06/18/devotions-book/

http://mommyjean.wordpress.com/2007/06/19/devotions-book-2/

mom of cairo wrote a comment on June 19, 2007

wow, 3 years, you poor strong thing you!
lucky the special shirt works!
i feel relieved just reading about it… i can imagine what you must have felt (or still feeling hahaha).

a toast of carrot juice!!! may the itch go away soon!

Chun Xiang wrote a comment on June 19, 2007

Praise God that everything is better now. Will keep you in my prayers. Take care.. :D

alternative-mom wrote a comment on June 20, 2007

Hi New Parent, thank you for your very kind thoughts. Yes, I admit it was hard dealing with it, both parents and child, and worse so for both the Angel and I at night. A sleep deprived mom is one who finds it hard to see the beauty all the time, but it went beyond being sleep deprived in this case. Nonetheless, I can almost say that it is ‘over’. So, after all that hard work, I can now say, “It’s worth it!” *smile*

alternative-mom wrote a comment on June 20, 2007

Hi Shirley, thanks for your bear hugs! *Hugs back* Yes, it was not only dealing with sleep deprivation but all that frustration, heart pain, Angel’s pain, and many more. I can live with less sleep but it sure WAS hard work every night before. I can’t be more than happy that the Angel has such an enlightenment! I’m beyond words and truly grateful for such an amazing change of event in our lives. What I’ve been feeling for the pass few days is beyond words. I no longer get angry anymore. *smile*

Thanks for sharing about your newphew. Is he using some E45 foaming bath milk? I’m not sure about the causes of eczema, and neither do the doctors. It is usually heredity or parents who are smokers. We do not belong to these two categories. Almost every specialistwe met are perplexed by the Angel’s acute eczema. We have been advised by a Chinese physician (met briefly at a friend’s house) that children with such problems have immature livers and kidneys, which is why they grow out of them as time pass.

To date, we do not know the cause and I guess I spend more effort dealing with the flares and itch-scratch cycle than the cause because it could have been anything which we do not have control over. I do suspect that one of the causes is the environment. The Angel was truly beautiful in Norway. I believe the air, food and water have a huge role in eczema but I cannot be sure for now. I need to live in Norway longer to test it out. *smile* So many children suffer from eczema here and that also explain why people here understand and are definitely more empathetic to the parents and child. In Asian country, it is not really common and most people, frankly, are not empathetic enough to the situations.

Do feel free to ask any questions! I’m not shy to talk about it at all. *smile*

alternative-mom wrote a comment on June 20, 2007

Hi Jean, thanks for sharing and yes, thank God! I truly, truly, truly grateful that the Angel had a revelation! It was the itch-scratch cycle that was causing all our nightmares! Thanks for remembering us. We are truly thankful! i’m really glad to have met you! *hugs*

Thanks for sharing on the devotion book. I will hop off to read it. I need to catch up on blog reading!

alternative-mom wrote a comment on June 20, 2007

Hi Mom of Cairo, yes, almost 3 years is no joke! We didn’t buy the Special Tshirt but since the Angel has mooted the idea to me, we went to buy two big ones and I have showed her how to sew them together! Frankly, there really isn’t any need for the tshirts now because it is her revelation that has enlightened her but I will still let her wear our homemade special tshirt. I thought her idea was brillant, especially coming from her! And with scratch, the itch-scratch cycle is almost gone.

Definitely, a toast of carrot juice is the best! Thanks and here’s to you, too! *smile*

alternative-mom wrote a comment on June 20, 2007

Hi Chun Xiang, thanks for remembering us! Indeed, I have to give thanks to God! I simply can’t express my gratitude! And hey, see you soon! *smile*

ky wrote a comment on June 21, 2007

Indeed something to be very happy about! Sometimes, things do turn in a better way, just when you are giving up. Parenting is hard work, but the rewards are sweet. Hang in there!

PS. Thanks for leaving a comment in my blog :)

Hi ky, thanks for dropping by. =) You are right about how things turn out better just when we are giving up. Thanks for the encouragement! I do find myself in need of it often! =)

Pam in Colorado wrote a comment on June 21, 2007

Oh my, what a time you have been through. I’m glad you are at the other side of this now. How wonderful for you that you can step back and parent from a different perspective now. Angel sounds like a dear and what a smarty (pants/dress/shorts - depending on what she is wearing ;) or so my little girls have decided this should be) she is. What a huge step for her in figuring this out and finding a way to work thorugh it.

I’m so glad you hit your low point, it often is there that answers are found. I’m also so sorry that your family has had to go through this time. I’m sure there will be great stories one day from this, until that time sleep, sleep, sleep away. :)

Hi, Pam in Colorado, thanks for understanding what a nightmare it has been indeed and I’m over the moon that it is my daughter herself who has had the revelation. It really makes a difference, for us to tell her and for her to figure it out, herself! But indeed, sleep hasn’t been sweeter and the best part is, my stress is now almost completely gone and I can focus on more positive things rather than using up a lot of energy fighting all this stress!

Irene wrote a comment on June 24, 2007

Oh my… 3 years. You are one strong woman. Hailey has mild eczema - on the inside of her elbows. And it drives me nuts that she has to scratch in order to sleep too.

We’ve used dermamed (a natural alternative to cortisone cream) and it helps with the occasional breakout that she does get.

It’s so neat when kids figure out the answers themselves. =)

Hi Irene, yes, you can say that again, it did drive me nuts, too, and sometimes still, when the Angel gets into her itch-scratch cycle. Absolutely right when you say that “it’s so neat when kids figure out the answers themselves” …. it is internalised, isn’t it! =)

[…] as the Angel was turning three, she finally discovered for herself the ’solution’ to her habitual night scratching. She has finally released us of those endless nights which had rendered me helpless and hopeless […]

Lyndall wrote a comment on August 28, 2008

Hi I have the same problem with my 6 year old daughter. She cannot and will not even try to go to sleep without me lying down with her and scratching her back. This can take anything from 10 minutes to 1 hour until she stops wriggling and falls asleep. It is incredibly frustrating waiting for that moment thinking about all the other things I’d rather be doing! She also has eczema although it is under control. She doesnt scratch much during the day yet at bedtime the so-called need to be scratched becomes a necessity. I cant help thinking it is more mental than physical. I explain to her that we’ll put the special cream on her back to prevent the itch but she throws a fit and refuses the cream. This causes me to run out of patience and its difficult not to be harsh! We all know kids need firm boundaries and parents that do not allow them to beat the system to their own detriment, but how do you break a bad habit with a child that just wont sleep on her own without a backscratch!

Care to comment?